Sunday, July 22, 2007

Still have seizure problems

He had a few more today. One was mild, 2 were pretty bad but at 5 minutes they started to ease and taper off. He has been quite sleepy. He does wake up & is alert but not to active. Any other ones I noticed were quite mild and only lasted a minute or two.

For Jordan, a mild seizure is when just his head is slightly twitching & the corner of one side of his mouth, it only lasts a minute or so and is not a very strong twitch. Any stronger or bigger type of seizure would be as strong as the twitching would be, and has also included his one arm twitching or a tremor. When his body becomes stiff with this twitching taking place, I consider it a more severe seizure. His eyes also dart and move to one side and his may smack his mouth. By neurological standards it may not be a major seizure as it is not convulsive, but it is bad for Jordan's standards.

I did put in a call to the doc & should hear back tomorrow. I have not had to give Diastat yet today, but if he has any more I will have to. He has been in good spirits, giving me such a sweet smile. But I know these are tough on him.

Jordan does have a nurse scheduled tonight so someone will be here & awake to watch over him. Say some prayers for our little peanut, that he can overcome these episodes & his doctor takes care of him and gives Jordan what he needs, so he can go back to enjoying life without worry of having fun causing a seizure. So he can be awake & alert to see all that is around him and still have the strength to participate & play. Scroll down & look at that big giggly laugh in the zoo day post, there is a picture, on the way home he had the giggles, thats what I want to see.

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