Epilepsy

I spoke to Jordan's Neurologist's office & he wants to increase his evening dose of Topamax by 25mg. He also is referring him to an epileptologist. I should be hearing back this week or I was told to call back by Wednesday. Doctor is writing a referral letter with history & explanation of what has been going on with Jordan.

For reference; epilepsy-these links help to describe things better than I can.

Jordan did have another episode this morning & I am concerned for him. I hope the office calls soon to have Jordan see the new specialists. I did express a tone of urgency, I usually do not overreact, but I mentioned these episodes are worrisome.

God did answer our prayer in that Jordan's doctor is wise enough to send Jordan to a doctor who specializes in his condition. I was worried he was going to want to try more meds, or different meds (many past docs do that), That can take a long time & take a toll on Jordan. We don't want him sedated, there has to be a way to treat these seizures so Jordan can still be alert & active & able to enjoy the life around him.

Well, I have to sort through my thoughts & notes & put together information for the new doctors. They typically have tons of questions and it is best to be prepared. I outline a brief history, explain the episodes, note dates and severity of episodes & just try to give them a easy to follow chart with any signs of patterns or not. I'm confused just thinking about it. I'll sort it all out though, I always do. And now I have the help of Jordan's nurses to help me sort through all the notes, dates & everything. They are awesome.

I will update with any big news, feel free to drop an e-mail even if you just want to check in. Jordan has been good this afternoon. Not as active as we like but awake & aware of whats going on. He is coherent & comfortable. I may take him to Justices soccer camp tomorrow. He was giving me a sad face today & making big sighs. I went through a list of "what's wrong, is it....???" And when I got to , "did you want to go to soccer camp?" He stretched his legs, banged his arms & made a funny face, that was a yes.