After the fundo

Jordan recovered well. He was in the hospital 2 days. Tylenol was all that was needed for pain and he handled his feedings great. Of course we had to continue slow feeds, with such a fresh procedure but in time, a gradual increase would bring him to a calorie intake that was close to where he needed to be. His stomach would only handle a certain volume at a certain rate (can't remember the particulars) As time went on the rate and volume would increase.
Jordan began gaining weight. Jordan stopped screaming. It was a miracle.

After several g.i. doctors, and several more neurologists, we had a new treatment plan for Jordan.

Jordan received early intervention services consisting of speech, physical, occupational, developmental & vision therapies. Each of these were once a week. The newest G.I. doctor was added to Jordan's care team just recently in June 07. His present neurologist has been a part of Jordan's care team for quite a while. I was not only seeking specialists who were talented to care for Jordan, but also who gave it to me straight. So many doctors sugar coated the reality of Jordan's injury and the time had come I needed to realistically plan for and manage Jordan's care.

Through Jordan's neurologist, we were referred to a physiatrist. This doctor manages Jordan's Baclofen. She also helps piece together Jordan's many issues. Because Jordan has so many specialists, therapists & complex conditions she picks up what falls through the cracks.
The physiatrist is the doctor who diagnosed Jordan with cerebral palsy.

Once Jordan's reflux issues were resolved, we were able to focus on the rest of Jordan's challenges. As hard as it was to hear, finally having a diagnosis actually helped me to understand what we were dealing with and how to go about managing Jordan's health care.