Happy boy

1 week and no Klonopin. Wow. I am so thrilled & nervous at the same time. He still has seizures daily but they go away on their own after 5-10 minutes. He is becoming more alert & HAPPY! He had the giggles the last couple days & it is such a joy to see him this way again. He is so much fun to play with. I love it. We are still going to go ahead with the Keto diet because if it works we should be able to cut down on some of his daily seizure meds & be not so sedated.

I have not posted in a while because the daily seizures & watching them suck the life out of him was getting to much for me. It was the same thing day in & out. It is heartbreaking & although I am an open book most of the time, I just didn't want to share the sadness anymore. I am glad I can share some joy for now.

Mike & I went away last weekend to Lake Geneva. A much needed mini vacation just the 2 of us.
The Willow Tree Foundation Helped fund the trip. We wouldn't have been able to go otherwise. I actually managed to schedule 24 hour nursing, and justice went to his cousins house & had a great time. Mike & I went horse back riding, had a wonderful dinner & visited wineries. Spent a lot of time putting around deciding what we wanted to do since we didn't HAVE to do anything, it was kind of strange. But we easily adapted. I missed my boys but was not worried for a second, just missed them. That was a different feeling too. Jordan was mad at me when we got back & he gets mad when I go to work now too. He is adjusting and geeze, I only work for about 5 hours a day.

Justice is settling into kindergarten finally. He is his happy self again. Jordan is used to me leaving for a few hours for work and happy when I get home. Mike has a very bad cold & I am going to quarantine him, he just doesn't know it yet.

Things are going rather well here. Uneventful, which is just the way I like it. I am also doing better myself. I needed the weekend also, and I am always better when Jordan is well.
No school today or Monday. I will be wore out by Tues, just in time to go back to work & unwind.