Yesterday Jordan was having more seizures. We ended up giving him Klonopin at 11:30 and he slept the rest of the day away. He woke at about 5:00 p.m. and was up in his chair playing with his brother, mike & me with his switch toys. While he did crack a few smiles & seemed in a good mood, he did not interact with his toys. I don't know if he is bored with them or just wiped from the meds & seizures. He fell back asleep in his chair at 7:30p.m. & went back to bed. He woke a few times coughing & needing suctioning. Justice has had a cough for a couple days so I don't know what we have brewing here. Just a cough, no other symptoms. Lets hope it stays that way w/both of them.
Over night he did have some more episodes & had even more this morning (he is still on his klonopin doses) It went on for over 20 minutes & we had to administer Diastat. It is such a hard decision knowing how the Diastat makes him feel. He looks really bad when I have to give it. I hope it can make him feel better after a nap. I decided it was best to give it rather than have him continue to seize & be wiped out from that. At least with the Diastat there is a chance he will feel better in a while. He also has his follow up appointment with the epilepsy doctor tomorrow. As I mentioned before, if he is going to have seizures & not respond to his therapeutic seizure meds, it is better to happen now so we can come up with a plan during his appointment.
His appointment is later in the day, at 2:00p.m. so I may not get an update posted until late.
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